Welcome to Putyourcoaton.com. This blog here to share the things I have learned since my son has been diagnosed with Sensory Processing Disorder, or SPD. I am not an expert. I am far from it. But I am a mom on a journey I never thought I would be on. And more than that, one that I started as a deer in headlights, only knowing that something was not right with my baby boy and I needed to help him (and us) figure out what was going on to give him a fighting chance in this life.
Jaxon is now 5 and a half years old. He is very focused on that 1/2. He was diagnosed at age 4. It took us several years of asking the doctor if and when we could have him tested for what we thought was ADHD. Our pediatrician kept telling us he was too young and I reluctantly went along. At his 4-year-old visit, I stopped going along. I expressed concern that he would start kindergarten in a year and I needed to have everything in place so he had what he needed to be successful in school. Finally, our pediatrician pointed us to where we needed to go.
See, Jaxon, like many SPD kids, is very smart. So, holding him back in pre-school was not an option because he would be more disruptive. The next step was to deal with the behaviors and find out why punishments that worked on other kids wouldn’t work on him and how to get through to him. We did not believe in medication at a young age, not that we are opposed to it, but it just wasn’t on our list at the time.
My mom was a school guidance counselor and we both have ADD. So we knew that ran in the family. And my mom guided us throughout the process, knowing that school would be hard for a kid who could not sit still unless we had what he needed in place. So we went to get tested. The first testing day went horribly. It turns out Jaxon was sick, so he would not test well. We went back again and he tested perfectly.
About 3 weeks later we had the assessment. I had never heard of SPD and had no idea what it meant. But as the doctor started to explain things, it all started to make sense. Jaxon was not autistic. He was not an ADHD child. He had sensory processing disorder and our life has forever changed.
I have joined a lot of Facebook groups for SPD and they have been amazing. Jaxon is not high on the spectrum. But he still has a hard time living in this world. He now has a 504 and is in OT and we are looking at getting him back into other therapies because he is not just diagnosed with SPD. He also has oppositional defiant disorder (it really is a thing), low muscle tone, and executive and frontal lobe disorder.
The one most important thing I have learned is that Iw ill always have to advocate for my son. And I am OK with that. THe second most important thing I learned is that no two children with SPD are alike Not everything will work for every child and not every child has the same issues. Be open and willing to learn, because that is going to help you and your child
Thank you for reading and hopefully, we can learn from each other as we continue on our journey through this thing called SPD.